Highlighting the Impact of the TAP Network on International Clinical Trials Day
On International Clinical Trials Day, Cure Leukaemia celebrates the life-saving difference that clinical trials make to people living with blood cancer
Chronic Myeloid Leukaemia (CML)
What is Chronic Myeloid Leukaemia (CML)?
Chronic Myeloid Leukaemia (CML) is a form of leukaemia where you have an increase in your white blood cells.
In CML, your bone marrow (the spongey part inside your bones) is producing too many myeloid cells, which are underdeveloped white blood cells that don’t work properly.
CML often develops slowly over several years, and is most common in people aged between 60 – 65.
Roughly, CML makes up 15 out of 100 leukaemia cases.
Symptoms and Diagnosis of CML
The majority of CML patients are asymptomatic, meaning little to no symptoms, and CML is only picked up through a blood test from their GP.
For some, where they have a much higher count of white blood cells, some patients experience:
– pain from an enlarged spleen
– Anemia
– Tiredness
– Bone pains
Treatment For CML
Treatment depends on if you’re asymptomatic or have a very high white blood cell count.
If you have a very high blood count, you could be put on a special machine that helps to skim off some of the extra white blood cells.
You could also be given medication to control and bring the white blood cell count down.
Side effects for treatment
The majority of patients receiving treatment for CML will often have very mild side effects.
Some side effects could include:
– aches and pains in your muscles
– face swelling
– rashes
– Indigestion
Clinical Trials For CML
There are trials looking at how to stop therapy and who can stop and who can’t.
There are also studies looking at new drugs and treatments, especially for those patients who aren’t responding as well to the currently drugs as others.
Patient Stories
Jonathan’s Journey Through the FEDORA Clinical Trial
Jonathan’s experience with the TAP-funded FEDORA Clinical Trial didn’t just improve his health—it gave him a second chance at life, highlighting the life-changing potential of clinical trials for patients with limited treatment options.
Cure Leukaemia’s Leeds ATICUS Network Event Highlights the Power of Clinical Trials for Children
An emotional and inspiring evening unfolded at the Cure Leukaemia Leeds ATICUS event this week, as families, clinicians, and supporters came together to champion a bold new initiative to transform treatment for children with blood cancer.
Caroline’s Battle with PCNSL and the Role of Clinical Trials
Diagnosed with a rare and aggressive blood cancer affecting the brain, Caroline’s hope came through a groundbreaking clinical trial.